Parents’ Perception Towards Quality Of Life Children With Leukemia In Arifin Achmad And Eria Bunda Hospital : A Mixed Methods Study

Abstract

Leukimia is a cancer which has the most prevalence to the kids. During the treatment is important to concern with their life quality. Children with leukemia experience avariety of physical and psychological problems which affect quality of life of the children. Purpose of this study was to explore perceptions and description toward the quality of life of children with leukemia. Considering the impact and the cure of physicale, psychological and social quality of life of them. This research used mixed method research with the sequential explanatory design by the total sample 34 parents ‘ leukimia sufferers with is intensive care in children ward of Arifin Ahmad and EriaBunda hospital. The result of quantitative research,showed that the parents’ perception score was 74 in average with deviance standard 10,725 meanwhile life quality score was 71,44 in average with deviance standard 13,948. Correlation test between parents’ perception with the quality of children life p 0’028. Qualitative data aimed to strengthen, deepen and widen qualitative data, The results found that parents’ negative perception was stated by considering the children are weak/ risky. In addition the life quality of the children in term of physical and emotional domain experiences the change such as so weary, feeling painful, physical activity decay and the children easily tend to be angry, afraid and feeling sad. Based on the result of the research , it is recommended that by the paradigm of children’s nurse family center care involves the parents in children treatment by giving information and educate the parents based on evidence based practice, so it can form the positive perception of the parents with leukemia child.